CBD Oil Tincture Trial: Days 90-141

CBD Oil Tincture Trial: Days 90-141

Hello World! Hope everyone is doing well! We have been riding the end of Gideon’s seasonal roller coaster. On Sunday, January 28th, Gideon did not have Miralax for a few days and got really constipated. Although children with CP may have a higher tendency toward constipation than other children, Baclofen increases the risk of constipation […]

CBD Oil Tincture Trial: Days 61-89

CBD Oil Tincture Trial: Days 61-89

Hello World! Sorry that it has been so long! I have been away due to the re-emergence of the last sinus infection and Gideon’s winter roller coaster medication/sleep schedule. Gideon has been taking his medications more regularly. He still has days where he only takes his meds once per day. As a result, we have […]

CBD Oil Tincture Trial: Days 31-44

CBD Oil Tincture Trial: Days 31-44

Hello World! To follow up Gideon’s therapeutic path, his PCP has ordered an intensive evaluation from PT, OT, and SLP. Their evaluation will be used to help us build a therapeutic schedule for Greg and me to follow. This would help us keep a consistent therapeutic schedule regardless of what happens with home therapy visits. […]

CBD Oil Tincture Trial: Days 24-30

CBD Oil Tincture Trial: Days 24-30

Hello World, As mentioned last week, we set his night time dosage to 16mg to balance the day and night doses before increasing his daily dosage. He did very well with this. So, Monday, one week after his evening dosage change, we increased his daily dosage to 24mg to total 40mg/day (24mg AM and 16mg […]

CBD Oil Tincture Trial: Days 17-23

CBD Oil Tincture Trial: Days 17-23

Hello World! Gideon has had a wonderful week. While he is still having those fun cycles, he has not missed any more medicine. He has begun to really work toward crawling, standing, and eating. He has been much more vocal and giggly. We have decided to increase his dosage slowly. Since his last dosage was […]

CBD Oil Tincture Trial: Days 13-16

CBD Oil Tincture Trial: Days 13-16

Hello World! Over the last few days, I have begun to think about a small increase in dosage for Gideon. We will discuss this with his therapist this week. He seems to have acclimated and seems eager to move forward with his abilities. Yet, as his parents, we want to be sure that he is […]

CBD Oil Tincture Trial: Days 10-12

CBD Oil Tincture Trial: Days 10-12

Hello World! It has been an interesting few days. To explain, I will have to give some background. If you aren’t familiar with cerebral palsy, you may not know that it’s a spectrum, in a sense. It is a blanket term for brain damage that shows one (or some combination) of a few different sets […]

CBD Oil Tincture Trial: Day 9

CBD Oil Tincture Trial: Day 9

Hello World! Today, I was taking notice of a few things Gideon enjoys—vestibular input and extension. As pictured, that is Gideon in extension. This is typically the only way he is able to maneuver his body. Now, with more laxity, he bends much further back comfortably. In a similar vein, he is still getting in […]

CBD Oil Tincture Trial: Days 5-8

CBD Oil Tincture Trial: Days 5-8

Hello World! We are taking weekends off to take care of and spend time with family. Usually, I won’t be taking Fridays off from writing, but this weekend has been especially busy. So, welcome back and here’s the news! Every so often, maybe once every couple of months, Gideon takes a day where he rests […]

CBD Oil Tincture Trial: Day 4

CBD Oil Tincture Trial: Day 4

  Last night, for the first time in a week or so, we put on one of Gideon’s braces that we alternate nightly (when on schedule). We waited for him to seem comfortable enough with the CBD to begin to use these again. We do not want to overwhelm him in any way. These braces […]

CBD Oil Tincture Trial: Day 3

CBD Oil Tincture Trial: Day 3

As mentioned yesterday, Gideon was given an additional dose of CBD oil (with his evening medication bottle) in the amount of 8mg. He slept more soundly, and his body was definitely looser during sleep and upon waking. Today, both Gideon and Kaylee had a dental visit. We were delighted to see that Gideon had more […]

CBD Oil Tincture Trial: Day 2

CBD Oil Tincture Trial: Day 2

Hello World! Gideon is doing well settling into this dosage. He is still loose and learning to adjust to his newly-acquired mobility. While it is not where we want to peak regarding his muscle tone, it is a great starting place to allow him to adjust. For those of you who do not know Gideon’s […]